website and rebranding to expand our support services to help those with any leukodystrophy, ALD being the most common.
COMMUNICATIONS VOLUNTEER ALD Life are a small, independent rare disease charity competing for essential resources within an extremely competitive arena. Ensuring we can communicate our mission and activities comprehensively to beneficiaries and supporters is essential to our continued success. Like many other small charities, we have grown organically from an informal support group to the recognised voice for adrenoleukodystrophy patients and their families. We are currently developing a new website and rebranding to expand our support services to help those with any leukodystrophy, ALD being the most common. With scant resources we are unable to employ dedicated communications staff and are looking to the voluntary sector for assistance. Although existing staff manage communications as best they can, we have identified this area as a key weakness. Could you spare a few hours a week to help us develop and implement a communications strategy to showcase our charitable activities, increase engagement and our online audience, and thereby attract new opportunities and partnerships?
ABOUT THE ROLE We are looking for volunteers experienced in PR and communications to help in a variety of ways:
Post “live” during our events (next event Community Weekend May 2018)
Create fundraising communications
This is a wonderful opportunity develop your existing skills within a unique arena, learn about the difficulties facing those with rare disease, and give vital and tangible support to sufferers of ALD. We need help to give hope and support to people affected by ALD – could you be that help?
ABOUT YOU Candidates should be able to demonstrate the following:
an interest in ALD Life and the work that we do
basic understanding of the complexities of ALD
willingness to learn about and understand the needs of people affected by ALD
ability to write sensitively and empathically
ability to communicate clearly in written and spoken English
understanding of the necessity to have relevant content checked for medical accuracy and context
understanding of data protection and confidentiality
ALD Life are flexible and the role can be home based or at our Peckham, London SE15 office.
