CP Research News 2018 - Cerebral Palsy Alliance Research ...

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Apr 30, 2018 - (exposure and satisfaction), recruitment and context will be ... Cerebral Palsy Alliance is delighted to
Monday 30 April 2018 Cerebral Palsy Alliance is delighted to bring you this free weekly bulletin of the latest published research into cerebral palsy. Our organisation is committed to supporting cerebral palsy research worldwide through information, education, collaboration and funding. Find out more at research.cerebralpalsy.org.au Professor Nadia Badawi AM Macquarie Group Foundation Chair of Cerebral Palsy Subscribe to CP Research News Please note: This research bulletin represents only the search results for cerebral palsy and related neurological research as provided by the PubCrawler service. The articles listed below do not represent the views of Cerebral Palsy Alliance.

Interventions and Management 1. Process evaluation of two home-based bimanual training programs in children with unilateral cerebral palsy (the COAD-study): protocol for a mixed methods study. Beckers L, van der Burg J, Janssen-Potten Y, Rameckers E, Aarts P, Smeets R. BMC Pediatr. 2018 Apr 24;18(1):141. doi: 10.1186/s12887-018-1111-1. BACKGROUND: As part of the COAD-study two home-based bimanual training programs for young children with unilateral Cerebral Palsy (uCP) have been developed, both consisting of a preparation phase and a home-based training phase. Parents are coached to use either an explicit or implicit motor learning approach while teaching bimanual activities to their child. A process evaluation of these complex interventions is crucial in order to draw accurate conclusions and provide recommendations for implementation in clinical practice and further research. The aim of the process evaluation is to systematically assess fidelity of the home-based training programs, to examine the mechanisms that contribute to their effects on child-related and parent-related outcomes, and to explore the influence of contextual factors. METHODS: A mixed methods embedded design is used that emerges from a pragmatism paradigm. The qualitative strand involves a generic qualitative approach. The process evaluation components fidelity (quality), dose delivered (completeness), dose received (exposure and satisfaction), recruitment and context will be investigated. Data collection includes registration of attendance of therapists and remedial educationalists to a course regarding the home-based training programs; a questionnaire to evaluate this course by the instructor; a report form concerning the preparation phase to be completed by the therapist; registration and video analyses of the home-based training; interviews with parents and questionnaires to be filled out by the therapist and remedial educationalist regarding the process of training; and focus groups with therapists and remedial educationalists as well as registration of drop-out rates and reasons, to evaluate the overall home-based training programs. Inductive thematic analysis will be used to analyse qualitative data. Qualitative and quantitative findings are merged through meta-inference. DISCUSSION: So far, effects of home-based training programs in paediatric rehabilitation have been studied without an extensive process evaluation. The findings of this process evaluation will have implications for clinical practice and further research regarding development and application of home-based bimanual training programs, executed by parents and aimed at improving activity performance and participation of children with uCP. PMID: 29699533

2. The Effect of Kinesio Taping on Handgrip and Active Range of Motion of Hand in Children with Cerebral Palsy. Ghaheri A, Maroufizadeh S. Iran J Child Neurol. 2018 Spring;12(2):121-122. PMID: 29696055

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Cerebral Palsy Research News

3. Self-reported upper limb functioning of pupils with cerebral palsy by the International Classification of Functioning, Disability, and Health. Lénárt Z, Szabó-Szemenyei E, Tóth AA, Kullmann L. Int J Rehabil Res. 2018 Apr 16. doi: 10.1097/MRR.0000000000000289. [Epub ahead of print] International Classification of Functioning, Disability, and Health: Children and Youth Version has shown an increasing role in the assessment of children with cerebral palsy (CP), but just a few researchers use it for individuals' self-assessment. In this study, we present the self-assessment of functioning of students with CP and changes by the end of a school year. Thirty-seven pupils with spastic CP involving upper limbs, 24 pupils with typical development, and 20 pupils with speech and language disorders were studied by International Classification of Functioning, Disability, and Health core sets for CP. The CP group reported limitations in sensory functions (P