Florida HIV/AIDS Advocacy Network (FHAAN) - The AIDS Institute

Florida HIV/AIDS Advocacy Network (FHAAN) Monthly Statewide Meeting Minutes Date: Monday – February 7, 2011 Time: 2:00 p.m. (ET) – 3:00 p.m. (ET)

Executive Committee:

Committee Co-Chairs:

Invited Speakers:

Jesse Fry (Co-Chair) Joey Wynn (Co-Chair) Ted Howard (Administrator)

Jesse Fry & Michael Ruppal (Advocacy) James Talley & Ted Howard (Focus) Ken Bargar (Membership)

Tom Liberti (Chief, FL Bureau of HIV/AIDS) Butch McKay (OASIS)

Members Attending: Andrew Paquette Beatrice Innocent Benjamin Allen Bob Reynolds Bridget Giles Butch McKay Dab Garner David Brakebill Dawn Hunter Denise Ruppal Evelyn Morales

James Talley Jess Feiler Jesse Fry Joey Wynn Judy Buchanan Katrina Ciraldo Ken Bargar Latrece Rowell Laurence Osband Marty Clemmons

Michael Ruppal Mick Sullivan Nathaniel Hendley Paul Moore Scott Brock Sherrie Serpas Steve Hoke Tim Salyer Tom Liberti Tom Gould William Harper

Agenda

Discussion

Plan of Action

Welcome/Roll Call Quorum Determination Meeting Guidelines

Quorum = 33% (4 of 12 required)

Met = 75% (9 of 12)

Review of FHAAN Missions, Goals and Objectives

 Mute phone when in listen mode. Do not put your phone on hold.  State your name prior to speaking.  Members to abide by our FHAAN Operating Agreement’s Process and FHAAN Code of Conduct. Mission: Florida HIV/AIDS Advocacy Network (FHAAN) advocates for statewide HIV/AIDS resources including education, policies, programs, funding and legislation. Goals: To ensure that Federal & State Legislators, the Florida Department of Health, Bureau of HIV/AIDS staff and local leaders are continuously in touch with their constituents needs and are supportive of the following: 1. Effective research-supported community prevention programs; 2. Access to adequate, culturally appropriate and stigma-free, care, treatment, housing and social/support services 3. Biomedical, clinical, and behavioral research; 4. Adequate funding for all aforementioned programs; and

5. Protection of the dignity of all people living with or at risk for HIV/AIDS, regardless of gender, race, ethnicity, sexual orientation or religious belief. Objectives: In collaboration with local, state, regional and national organizations, FHAAN will develop and implement 1. Public policy, education and advocacy strategies; 2. Engage in message development and media activities; and 3. Support community mobilization and grassroots activism. Minutes Review/Approval from Previous Meeting COMMITTEE REPORTS AND DISCUSSIONS:

Executive Committee Joey Wynn, Jesse Fry and Ted Howard Membership Committee Ken Bargar

Product and Policy Advocacy Committee Jesse Fry and Michael Ruppal

Focus and Structure Committee James Talley and Ted Howard

Monthly committee achievements and goals, and next month’s Full FHAAN webinar agenda. http://www.theaidsinstitute.or g/sites/default/files/attachmen ts/FHAAN%20Membership%20 Committee%20NOTES%20%28 2011.02.02%29.pdf http://www.theaidsinstitute.or g/sites/default/files/attachmen ts/FHAAN%20Product%20&%2 0Policy%20Advocacy%20Comm ittee%20Monthly%20Meeting% 20Notes%20and%20Action%20 Items%20(2011.01.07).pdf

http://www.theaidsinstitute.or g/sites/default/files/attachmen ts/FHAAN%20Focus%20and%2 0Structure%20Committee%20 Monthly%20Meeting%20Notes %20and%20Action%20Items%2 0(2011.01.07).pdf

Reviewed and agreed upon by Convening Group.  Membership and Operating Agreement Forms due 1/31/2011. 25 Received.  Moving to online form fill via email for February. Intro Letter - Jesse: pending 1. Priority Issues 1-Pagers:  Access to Care:  ADAP – Brakebill: drafted  AICP – Jesse: pending  Medicaid – Joey: writing  Housing – James: updated  Prevention – Ken: updated  Health Reform – Joey: writing  Payers – Jesse: updated (same as below?)  How Members Get Care – Jesse: pending 2. Fact Sheet 1-Pagers – Ted: pulled data 3. Snap-Shots – Ted: pulled data 4. Survey – Ted: drafted 5. AFJ Webinar – Ted: completed 1/24 6. Lobby Day (3/17) – Jesse & Joey: pending Agenda prepared for next month’s committee meeting, to include: 1. Very minor adjustment to About US. 2. Operating Agreement proposed updates 3. Distinguish and inform: * FHAAN listserv = posts to have a policy impact. * Program operation and resource sharing = (how/where?). 4. FHAAN.org. 5. Meeting Template & Standards pilot. 6. Finalize FHAAN Monthly Meetings Schedule. 7. Updates to Membership Form 8. Online Membership Form

ADAP Update

Tom Liberti Chief, FL Bureau of HIV/AIDS

1. Florida Government Budget - Coming out today. Will be reviewing impact on our HIV/AIDS and Hepatitis budget. 2. National AIDS Strategy - High-Level discussions with White House. May result in how we do planning in Florida. Just factfinding at this point. 3. ADAP – Past 1.5 months negotiating with Welvista. We now have a signed contract for 2/14/11-3/31/11 for this “bridge program”. After 3/31/11 is currently unclear, but some plans: a. Federal government’s continuing resolution. b. State appropriations process c. Have applied for ADAP Supplemental funds under Ryan White d. Program changes going forward e. AICP rebates coming. Legislative Session – For the past month, many of us have been educating our Florida legislators on our issues. We will be fighting to get our funds via General Revenue. County Health Departments – working to assist the state. Pulling funds from many sources to close the gap. Some counties really stepped-up to help (e.g., Hillsborough). A number of other states have effective programs we will be looking at. Q&A: Q1: (Butch) How to project how many people will be on next year’s Florida ADAP Waiting List? A1: (Tom) Use of more sophisticated calculations, After April, with the right people. (1) Those in immediate need of Rx, (2) those currently on the waiting list, and (3) Growth factor. Then, all sent out for review and understanding. Q2: (Michael) When will more current CDC data become available? Q2: (Tom) 2006-2008 data is supposed to be coming out soon.

Old Business:

Tallahassee Update – Jesse Fry

3 weeks of meetings before session will be focused on messaging. FHAAN Advocacy Committee will work this month to complete our priority issues 1-pagers with supporting fact-sheets and snap-shots. Including, copies of our 1-pagers, etc. to Larry Osband [email protected] for their lobby day help. Working so we can get the funding needed in Florida. Especially keeping an eye on the Continuing Resolution in DC next week.

Establish Regular Meetings Schedule – Ted Howard

New Business

ADAP Crisis Summit – Joey Wynn

Activate U – Gainesville – Butch McKay

Jesse will keep FHAAN members updated on activities. Effective: February, 2011: Meeting FULL FHAAN

Day (Monthly) Time 1st Monday 2pm (ET)

Committees:  Membership 1st Wednesday 9am (ET)  Advocacy 2nd Monday 2pm (ET)  Focus 3rd Monday 2pm (ET)  *Convening 4th Monday 2pm (ET) (*Exec Cmte and active Committee Co-Chairs) By aaa+, in Broward January 29-30. Summit a success, with very positive feedback from the vast majority of participants. Next Summit in D.C. later this year. Gainesville Activate U February 25th Gainesville Activate U February 25, 2011 flyer.pdf

Positive Living Conference – Butch McKay

FHAAN Profile Update Email Ted Howard Announcements:

Creating Change – David Brakebill

Positive Living 14 Conference March 11-13, 2011 in Ft. Walton Beach, Florida at the Ramada Plaza Beach Resort http://www.aidsoasis.org/AIDSoasis/Positive_L iving_Application_Preference.html Emailing all FHAAN contacts this week with online form-fill to update all profiles for FHAAN. At NGLTF’s Creating Change Conference, there is work happening on HIV/AIDS and Aging via the Older American’s Act. They are working on receiving funding.

AIDS Watch –

Katrina Ciraldo

Anyone planning to attend or knows someone planning to attend AIDS Watch, please contact Katrina Ciraldo at [email protected] or 786325-5049.

Next FHAAN Monthly Meeting: FIRST Monday of each Month at 2pm (ET) Monday March 7, 2011 Location: Webinar (online registration email to be delivered by one week in advance)

Executive Committee Mission: Florida HIV/AIDS Advocacy Network (FHAAN) advocates for statewide HIV/AIDS resources including education, policies, programs, funding and legislation. Goals: To ensure that Federal & State Legislators, the Florida Department of Health, Bureau of HIV/AIDS staff and local leaders are continuously in touch with their constituents needs and are supportive of the following: 1. Effective research-supported community prevention programs; 2. Access to adequate, culturally appropriate and stigma-free, care, treatment, housing and social/support services 3. Biomedical, clinical, and behavioral research; 4. Adequate funding for all aforementioned programs; and 5. Protection of the dignity of all people living with or at risk for HIV/AIDS, regardless of gender, race, ethnicity, sexual orientation or religious belief. Objectives: In collaboration with local, state, regional and national organizations, FHAAN will develop and implement 1. Public policy, education and advocacy strategies; 2. Engage in message development and media activities; and 3. Support community mobilization and grassroots activism.

Product and Policy Advocacy Committee Mission: To identify our audiences and educate them on our issues: Goals: A. Materials: 1. Introduction Letter. 2. Priority Issues 1-Pagers. 3. Fact Sheets 1-Pagers. 4. Snap-Shots. B. Audience C. Education

Focus and Structure Committee Mission: Create and manage the structure, processes and documentation to set-up FHAAN for success. Goals: 1. Organizational Structure. 2. About Us. 3. Member Application. 4. Operating Agreements. 5. Web-based shared communication systems (listservs, documents, etc). 6. Meetings Structure/Process.

Membership Committee Mission: Grow membership and enhance membership involvement to help meet member needs and meet the needs of FHAAN. Goals: 1. 250 members by this time next year. Objectives:

Go over current membership list to…

A. Evaluate who we have, see who wants to stay on and who does not. B. Invite more people at various locations such as; Advocacy Groups: Consumers: black, Latino, PCPG, PPG, Etc. C. Establish or reinforce an advocacy chair at each Ryan White consortia and planning council Strategy Points: 1. ID Contact info for all these folks. Create database. 2. Communications to each of these people 3. ID Overlap within our FHAAN membership 4. New Florida Legislative contacts