Impact report 2015 - Healthtalk.org

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experiences. You did the job and now I feel more at ease. Easy to navigate and good layout makes this a definite bookmar
Impact report 2015

who we are Dear Supporter, Almost 50% of people in the UK now look for health information online and I’m proud to say that this trend is reflected in our website statistics. We’ve doubled our visitor numbers since 2014, to five million a year!

Luís after running this year’s

We’ve added six new health issues and started work on a new ‘mobile-responsive’ version of the site. This will make us more accessible to those using phones or tablets. So in 2016, we’ll help even more people.

British 10K in London.

But the visitor numbers don’t tell the whole story and you will notice, as you read this impact report, that we’ve been working hard to find out exactly how healthtalk.org is helping those visitors, with statistics and testimonials to back it up. With thanks for your continued support,

Luís Carrasqueiro Chief Executive [email protected]

We are an online charity that provides health information, from patients, for patients, through our award-winning website healthtalk.org. Visitors to our website can find out what it’s really like to have conditions such as pancreatic cancer, stroke or depression by watching videos of others, sharing their personal experiences. We work with world-leading researchers at the University of Oxford’s Health Experiences Research Group, at the Nuffield Department of Primary Care Health Sciences. They have interviewed thousands of people who’ve shared their story to help others who are having similar experiences. As a charity, our mission is to help and inform patients, carers and healthcare professionals by sharing trustworthy, personal health experiences. Our information is reviewed every two years as part of our commitment to the Information Standard, an accreditation that is awarded by the NHS as the ’gold standard’ mark of reliable health and social care information.

who we help Website visits (millions):

Visitors come from:

Most visited sections: Pancreatic cancer Motor neurone disease Urinary catheters TIA and minor stroke Menopause Cervical abnormalities Epilepsy in young people Bowel Screening Stroke Depression in young people

Visitor ages:

Visitors seek information for: Self, family/friends, work

how we help healthtalk.org provides good, clear information 

9/10 can easily understand the information on the website



8/10 feel better informed



8/10 found information they didn’t find elsewhere



8/10 found answers to questions that they would otherwise have asked a health professional



7/10 found that the videos helped them understand the issue better

“Thank you for the clear information. I have just been diagnosed with epilepsy and I was having trouble finding concise information and others’ experiences. You did the job and now I feel more at ease. Easy to navigate and good layout makes this a definite bookmark.” – Martyn “It’s such a good website, and has talked about things I’ve experienced that I have never seen written anywhere else. I always knew a lot but I still feel more informed anyway. I love this website, it’s so educational.” - Jen “Big thank you for the menopause section of your website. It is the most accurate and useful information I have yet found about the topic. I am a husband that wants to support and understand what my wife is experiencing. Your site helps. Well done.” - Randy

Patients, family & friends healthtalk.org supports patients and families 

7/10 feel reassured and less alone



7/10 feel that the people who have shared their experiences on the website understand what is important to them



7/10 feel better prepared for possible changes to their health



6/10 feel more confident in explaining their health concerns to others

“I’ve been struggling with depression since I can remember, and have struggled even more with trying to get people to understand how I feel. I had my parents watch the videos on this site. Now they and I know that I am not alone. They understand that it can be crippling and have decided to help me. Thank you so much, this information saved my life.” – Maisy “Feeling very depressed after having suprapubic catheter. Watching the videos on your site made me more positive about my future.” - Lesley “I’ve been struggling with symptoms for almost a year. It was so good to hear my story being told. It was like finding myself for the first time in a long time. I thought I was losing my mind. This has helped me immensely. I will listen again and again so I can remember I’m normal!” - Jayne

how we help healthtalk.org supports patients and doctors 

8/10 feel better prepared for their next appointment with a health professional



7/10 have a better understanding of their personal health



7/10 are encouraged to take positive actions for their health



6/10 wish to take a more active role in their healthcare



6/10 feel more confident about managing their health

“I'm off to the stroke clinic tomorrow after a suspected TIA. I've found reading your site great for information and getting me ready for what might happen tomorrow. I'm pretty scared about the future, but also feel optimistic that this could be a wake up call.” - Matt “I am just writing to thank you for the extremely helpful information on your website. It is the best information I found on any website. Forewarned is forearmed and knowledge is power, I can now go to my surgeon's appointment not feeling helpless and stupid. Now I can ask "proper" questions and get the right answers for me.” - Fran “I think my husband has suffered from 2 TIAs and after reading this I have rung the GP and asked for a visit. This site has helped me to explain his symptoms to the doctor” - Jennifer

Public & professionals healthtalk.org in teaching & learning 

80% of UK medical schools use our videos in teaching.



Our ‘Friends of healthtalk.org’ scheme for teachers and trainers, enables the use our clips in lectures and embedding presentations. Visit healthtalk.org/friends for details.



Our ‘Scrapbooks’ tool allows visitors to the website to create collections of our text content and videos. Students have been making scrapbooks as part of their learning.

“You could see the light-bulbs coming on as student groups selected and viewed patient videos. I plan to set scrapbooks as an assessment item next semester” - James Townshend, School of Pharmacy, Griffith University “It’s impossible to understand the complexities, the personal and psychological impacts of an illness without hearing from somebody who actually has it. Thank you for helping me with my education, I’m certain that I will be a better doctor because of it.” - Khalil, Medical Student “We use clips from the healthtalk.org section about bereavement due to suicide and traumatic death. They are a great training aid as they are such a powerful tool; real people talking with great dignity and emotion about the effect of sudden violent death and dealing with the loss of a loved one.” - Chief Superintendent Ian Kennedy, West Yorkshire Police

what we’re doing 2015 Achievements:  New additions to healthtalk.org on: Electroconvulsive treatment, Kidney health, Asthma, Bone surgery, Stopping smoking, Multiple sclerosis: friends & family.  Formed a partnership with Legal & General to raise the profile of healthtalk.org and support their clients and staff. Awards  healthtalk.org was shortlisted for a Charity Times Award in the ‘Best Use of Web’ category.  The ‘Family experiences of minimally conscious states’ section won three awards: The BMA Patient Information Award for Information on Ethical Issues, ESRC ‘Outstanding impact’ prize & Cardiff University’s Innovation Policy Award. Fundraising  Guests at our gala dinner at the Vintners’ Hall in March raised £20,000 to pay for the new mobile version of the site.  This year’s British 10K runners raised £3,500; a new record for us from this event.

Plans for 2016:  New sections will be added to healthtalk.org on: Depression in young adults (in USA), Young people’s experiences of primary care, Influenza in ‘at-risk’ children, Neonatal surgery, Living with more than one health condition, Alport Syndrome, Domestic violence and Pre-Eclampsia.  By early 2016 our new mobile responsive website will be live. This will give a better experience to the 60% of visitors who already access healthtalk.org on a mobile device and help other mobile and tablet users to find their way to us. Fundraising  We have six places for the British 10K in July, a fun road race with a great atmosphere and a route that takes you past all of London’s most iconic landmarks. If you are interested in running for healthtalk.org, get in touch: [email protected]  We have our very first London Marathon place and we’re very grateful that Gavin Mansfield has taken up the challenge, having already run the British 10K twice for us.

adopt a day We’ve been inviting people to ‘Adopt a day’ by setting up a monthly donation of £5. This amounts to an annual donation of £60; the amount it costs to keep the website going for 24 hours. In just one day on healthtalk.org:   

20,000 people will visit the website 8/10 will find information they haven’t found elsewhere 7/10 will feel less alone in what they are going through

In 2015 our supporters adopted 162 days - that’s more than 5 months! In 2016, we’d like see even more days adopted. Please visit healthtalk.org/donate to adopt a day now.