A Guide for Senior Managers

2015

Leading State Maternal and Child Health Programs:

CONTENTS FORWARD...............................................................................................................................4 AUTHORS’ PREFACE..............................................................................................................6 GETTING STARTED.................................................................................................................8 Are You a State Title V Leader? ........................................................................8 Your First Months as a New MCH Leader...........................................................8

CHAPTER 1 The Big Picture: Title V as a Foundation for Ensuring the

Health of Women, Children, Including Children with Special Health Care Needs, and Their Families....................................10

The Roots and Evolution of Title V..................................................................11 Conceptual Frameworks for Title V..................................................................14 Key Concepts for Maternal and Child Health...................................................18

CHAPTER 2 The ABCs: Title V at the National and State Levels...................24 An Important Tool for Building State Systems.................................................25 How are State MCH Programs Organized?.......................................................25 What Do State Title V Programs Actually Do?..................................................26 What Is the Role of the Federal MCH Bureau?.................................................29 The Federal-State Partnership in the 21st Century..........................................30 CHAPTER 3

The Big Picture: Leading through Influence to Achieve Change..................................................................32

You Have Power and Influence! ......................................................................33 What Kind of Leverage Does Title V Provide?..................................................34 Use the “Vision Thing”! ..................................................................................35 Know Your Key Stakeholders...........................................................................36 Understand Your Advocacy Role......................................................................37 Understand the Policy Process.........................................................................38 Use Communications and Marketing Strategies...............................................40 CHAPTER 4

The Affordable Care Act.......................................................................41

Health Insurance Marketplaces ......................................................................42 Coverage and the Medicaid Expansion............................................................42 Insurance Coverage Reforms...........................................................................43 Preventive Service Benefits.............................................................................44 Children’s Health Including Children and Youth with Special Healthcare Needs ......................................................................47 CHAPTER 5

The ABCs: Key Players at the National and State Levels............50

Public Policy at National and State Levels.......................................................51 Key Federal Partners.......................................................................................56 National and State Organizations....................................................................63 2

CHAPTER 6

The Importance of Family Centered Care..............71

What is Family/Consumer Partnership?......................................72 How to Build Family/Consumer Engagement in Your State.........73 CHAPTER 7