Making IT Meaningful: How Consumers Value and Trust Health IT

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Making IT Meaningful: How Consumers Value and Trust Health IT FEBRUARY 2012

1875 Connecticut Avenue, NW | Suite 650 | Washington, DC 20009 202.986.2600 | www.NationalPartnership.org

Acknowledgements This report would not have been possible without the generous support provided by The Commonwealth Fund, Merck & Co., Inc., WellPoint, Inc. and the California HealthCare Foundation (CHcF). The Commonwealth Fund is a national, private foundation based in New York City that supports independent research on health care issues and makes grants to improve health care practice and policy. The views presented here are those of the author and not necessarily those of The Commonwealth Fund, its directors, officers or staff. Merck & Co., Inc. is a global leader in delivering innovative health solutions through its medicines, vaccines, biologic therapies, and consumer care and animal health products. WellPoint is the nation’s leading health benefits company serving the needs of more than 33 million medical members nationwide. The California HealthCareFoundation is a nonprofit grant-making philanthropy based in Oakland, California. The National Partnership is indebted to Professor Alan Westin, Ph.D., for his invaluable leadership and contributions to the writing and analysis in this report, as well as to our colleague David Krane at Harris Interactive. The National Partnership and Professor Westin would also like to thank the members of our Survey Advisory Committee, a full listing of which can be found in Appendix A. The editing team at Health2Resources, led by Katherine Capps, provided thoughtful revisions and insights to the report, and we offer them our sincere thanks. And last but not least, we are grateful to our colleagues at the National Partnership, in particular Tenley Peterson, Sadie Kliner, Lisa Lederer of PR Solutions, Perry Sacks, Freya Riedlin and Eva Powell, for their assistance. 1875 Connecticut Avenue, NW | Suite 650 | Washington, DC 20009 202.986.2600 | www.NationalPartnership.org

Table of Contents I.

Executive Summary ..................................................................................... 1

II.

Background and Survey Objectives ............................................................ 8

III.

Survey Methodology .................................................................................... 10

IV.

How Respondents View and Value Their Record Systems ...................... 14

V.

Patient Trust in Record Systems .................................................................. 29



A. Privacy Attitudes B. Handling of Patient Privacy Rights C. Documenting and Exploring Patient Trust D. Impact on Privacy Perceptions of a Doctor Switching from Paper to Electronic Records

VI.

Analysis: How Hispanic Adults View Record Systems ............................. 40



Who We Surveyed Discussion/Summary of Key Findings Listening to the Hispanic Voice Beyond Technology Policy Implications and Recommendations A. Survey Context B. Survey Objectives C. How This Report Proceeds

A. Creating the Basic Samples B. Oversampling of Hispanic Respondents C. The Questionnaire D. Variations E. Profiles and Comparisons of Respondents

A. System Operations B. Usefulness of Systems in Helping with Care Delivery C. Usefulness of Systems to Doctors and Patients D. Impact of Record Systems on Quality of Care E. Online Access to Medical Records

A. Hispanic Adults in EHR Systems B. Hispanic Adults in Paper Systems C. How EHR and Paper-System Hispanic Adults Compare

VII.

Policy Implications ........................................................................................ 46 A. Consumer Education and Engagement B. Functional and Privacy Requirements for the Meaningful Use Program C. Other Important Federal Programs

VIII. An