Securing the Future of Innovation in Cancer ... - Project Innovation

May 5, 2014 - that contributed to the research and development of “Securing the Future of .... finding creative ways to promote and review medical innovation. ..... http://www.cml-‐foundation.org/index.php/news/169-‐cml-‐a-‐short-‐history-‐ ...
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Securing the Future of Innovation in Cancer Treatment Developed by: National Patient Advocate Foundation In Collaboration with: The Cancer Innovation Coalition

Cancer Cures Are Born of Medical Innovation

Spring 2014

           

 

  Acknowledgements        

It  is  with  gratitude  and  appreciation  that  I  herein  recognize  a  number  of  individuals  and  organizations   that  contributed  to  the  research  and  development  of  “Securing  the  Future  of  Innovation  in  Cancer   Treatment.”  This  paper  was  drafted  by  National  Patient  Advocate  Foundation  (NPAF)  Executive  Vice   President  Lou  LaMarca  and  Legislative  Affairs  Director  Ian  Hunter,  with  medical  and  scientific   collaboration  from  Dr.  Charles  Balch,  University  of  Texas  Southwestern  Medical  Center  Professor  of   Surgery  and  Chairman  of  NPAF’s  Scientific  Committee.  Their  work  reflects  the  collaboration  of  experts   from  a  variety  of  health  care  stakeholder  organizations  to  whom  we  are  most  grateful.       NPAF  acknowledges  with  appreciation  those  organizations  that  have  joined  the  Cancer  Innovation   Coalition  (CIC),  established  to  provide  an  opportunity  for  intellectual  contributions  from  a  broad   representation  of  stakeholders  to  prepare  the  white  paper  for  publication.  It  is  a  testament  to  the   professional  commitment  of  the  member  organizations  of  the  CIC  that  they  are  participating  in   ongoing  outreach  to  their  constituencies,  educating  them  on  the  issues  presented  in  “Securing  the   Future  of  Innovation  in  Cancer  Treatments”  and  engaging  in  policy-­‐related  solutions  developed  by  the   CIC.  We  gratefully  acknowledge  the  involvement  of  the  following  CIC  members:  the  Association  of   Community  Cancer  Centers,  Bristol-­‐Myers  Squibb,  the  Cancer  Support  Community,  Celgene   Corporation,  the  Colon  Cancer  Alliance,  the  Council  for  Affordable  Health  Care,  Friends  of  Cancer   Research,  Genentech,  GlaxoSmithKline,  Eli  Lilly,  the  National  Patient  Advocate  Foundation,  Novartis,   the  Oncology  Nursing  Society,  Pfizer  Inc.  and  the  US  Oncology  Network.     As  editor  of  this  publication,  it  has  been  a  privilege  to  work  with  these  organizations  and  our  NPAF   representatives  in  the  completion  of  this  important  document,  which  highlights  specific  areas  of   concern  that  must  be  addressed  if  the  United  States  is  to  maintain  its  leadership  in  research  and   development  of  innovative  new  cancer  therapies.  This  initiative  will  require  all  stakeholders  to  work   together  to  achieve  solutions  to  these  areas  of  concern  and  to  secure  “the  Future  of  Innovation  in   Cancer  Treatments,”  assuring  all  people  in  America  of  a  brighter  future  as  new  ways  to  cure  and/or   manage  the  disease  are  developed.         Nancy  Davenport-­‐Ennis     NPAF  Founder  and  Chairman  of  the  Board             Securing  the  Future  of  Innovation  in  Cancer  Treatment    -­‐-­‐-­‐      Cancer  Innovation  Coalition      -­‐-­‐    May  5,  2014        

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Table  of  Contents  

Executive  Summary  

5  

Science  of  Innovation:  Streamlining  Logistical   Obstacles  

8  

Understanding  the  Risk  of  Innovation  

9  

The  Impact  of  the  Rising  Cost  of  Cancer   Treatment  on  the  Health  Care  System  

10  

The  Role  of  Generic  Medications  

11  

Recognizing  the  Value  of  Innovation  

11  

Innovative  Treatments,  Meaningful   Gains  

13  

Recommendations  for  Improvements  to   Innovation  

15  

Collaboration  among  Developers